Okay so, if you know me, then you know I love clothes and trying out different styles. Dresses are some of the easiest things a girl can wear and they are very versatile. Here lies the problem: I have a G-Tube (Gastro Tube) and I take medication every four hours four times a day. The G-Tube is located to the (left if you’re me) of my belly button, so in order to access it to take my meds, I would have to lift up my dress and it is frowned upon in society to flash people. When you’re a kid, you don’t really care but as a 21-year-old girl, you can’t be walking around with your dress pulled up. There is always the option of going to the bathroom, but there is not usually a table or flat surface to put everything on and frankly leaving wherever I am (which is usually fun because I’m fun) is not something I want to do. Besides that, bathrooms are gross.
So here is my thought: make CUTE dresses with access to whatever tube you have. There are some, albeit very few, companies out there who make clothing like this, but let’s face it, they are UGLY. All I’m asking for is a cute dress where I don’t have to flash people. Is that too much to ask? I don’t think so, but people who don’t have this issue don’t think of it being a potential problem. This is where I come in. I have ideas for how to make this work while still looking cute and fabulous, like every girl should, but is practical. Some ideas I have come up with are wrap dresses that where the fabric wraps around there’s a space where you can pull it aside and access the port there. There are the possibilities of flaps, but that’s harder to make look cute. Another idea is to make a faux two-piece where the fabric lays on top of the waist of the dress and is attached in the back but can be lifted without lifting the skirt of the dress.
These ideas may be hard to imagine, but I hope I got the general idea across. By the way, if any of you guys are fashion designers or know of someone or a company, please share this post and get me in contact with them.
I have found websites that cater to cancer patients which is great, but one of my pet peeves is that people tend to focus on the short-term disabilities or things that develop later on in life, not the disabilities that people live with their ENTIRE lives. Cancer sucks. So does all diseases and disabilities. People know what cancer is. You say the word and everyone understands. You say muscular dystrophy or neuromuscular disorder and they go, “huh?” My goal is to have people know what these words mean and how they affect people’s lives. I want companies to think about the other people who have lived with this for their whole lives. We deserve cute, fashionable clothes that are also practical too.
Thank you for reading and I hope I have inspired someone to make small changes in their world.
Stay true, stay you!
PS: Here are some dresses I like to wear!
A Girl With a Rare Disorder 
That’s an awesome idea! When I was young, they didn’t have G-tubes or I definitely would have had one!
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