Good Morning!!
Today I wanted to try something different. This blog has been about me and my life and today I wanted to switch it up! So tell me about yourself. Where do you live? What do you do for work (or school)? Got any pets? Favorite thing to do on a rainy day? What about a sunny day? What makes you excited to get up in the morning? What is something you want the world to know? What are you passionate about?
My blog is about educating society on life with a chronic illness, and how its not so different from other lives. I just happen to have the ability to not have to taste my nasty medication because I have a tube in my stomach, that contrary to popular belief, doesn’t hurt. I also have a voice that isn’t always easy to understand, but that gives me the ability to not have to talk to people I don’t want to! (The last sentence was a joke, well somewhat, but I am still a polite member of society).
Leave your thoughts and tender musings in the comments! I can’t wait to learn more about you all!
Stay beautiful!
A Girl With a Rare Disorder 
I, also, have a rare disease and am the eldest surviving with it. At the time I was born, they didn’t have feeding tubes. Now, most of the children who have this, do. What is the name of your disorder? To answer your questions : I live in Las Vegas, NV and love it here! I have 4 beautiful cats! My favorite color is Purple. The sun makes me happy, so do friendly people, all the bright lights and especially God! I am a strong believer and Christian!
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Thats amazing!! I have Congenital Myasthenic Syndrome (Fast Channel). What rare disability do you have?
Thank you so much for sharing!!
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Propionic Academia. It used to be that i could not metabolize the amino acid Glyceine. There’s a lot more to it now, though
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Hi! You have such a great sense if humor and are always busy doing something. What kinds of things are on your bucket list? I get a sense you will tackle them all!
I live in NH…I knew you when you were about 2, havent seen you in a loooong time, but I hear lots about you and none of it surprises me. You were a determined little girl then and nothing would stop you!💕
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Hi! Thank you so much! I have lots of things on my bucket list!!!
I want to travel Europe, go see where F Scott Fitzgerald lived with Zelda in Alabama, lots of travel! Oh see the northern lights is another!
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